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Our approach when dealing with the media

In a day and age where social-media is so widely used, for TV production companies wanting to recruit participants with OCD for their programmes it’s no longer necessary to come through charities like OCD-UK or approach the national OCD treatment clinics. 

That in itself is not necessarily a problem where a production is ethically sound, but for the community of people with lived experience of OCD on social-media this can be problematic when questionable or even unethical media recruitment approaches are used.  

Part of the OCD-UK mission is to advance awareness and understanding of Obsessive-Compulsive Disorder. However, our approach has always been that we will never participate in awareness of the condition at the expense of participants. This is not a policy all organisations follow, but it's the OCD-UK way and a policy we intend to continue. For this reason whenever we are approached by TV companies (or news outlets) we carry out our own due diligence, we ask questions, we look at their production history and we find out which channel is involved. Following this approach we often turn production companies away where we feel there are concerns, much like we did with Betty TV when they first approached us over their plans to make a programme that showed the positive's of having OCD (as if!). 

Unfortunately because media companies can now use social-media to appeal for participants and can even directly contact people with lived experience of OCD, something we find troubling and unethical, our due diligence process is not always going to be helpful in weeding out projects which may not be in the best interests of people with OCD, Obsessive Compulsive Cleaners being one such example. 

As a general rule our advice to our supporters is if you don’t see OCD-UK promoting a television company production or project, you need to ask yourself or even contact us directly to ask us 'why?' before you choose to get involved.  If you do decide to proceed that needs to be your choice, but we want to advise you that you should not feel pressured into agreeing to be involved if you receive direct messages and only do so if you’re 100% comfortable that it is right for you. Equally, if you do proceed, it is ok to change your mind at a later time. When deciding to participate, it may also be prudent to ask yourself if the programme will help the wider community of people living with OCD, again this is where OCD-UK may be able to help you if you're unsure.

At the present time there is an aggressive recruitment drive by a production company for an OCD programme that many of you have already expressed concern about. We have approached that company to ask some questions, none of which were satisfactorily answered.  Our concerns include. 

  • The previously mentioned aggressive recruitment by directly messaging users.  
  • Our understanding is they intend to interview multiple people with OCD, and then will ‘select’ those that they feel are appropriate for TV.  This suggests only certain aspects of OCD will be covered, i.e. those with obvious visual compulsive rituals.
  • The above recruitment selection also means people’s valuable time will be wasted and for some they may pour all their emotions out during selection, which will be brave and draining but ultimately for no good reason.
  • Based off the image used in their recruitment advert of a pair of perfectly healthy hands (and now a switch being flicked), it suggests a real lack of understanding about OCD and playing to stereo-typical views of OCD.
  • Refusal to divulge which channel the programme is for.
  • Refusal to be clear if they will be working with an OCD expert and if so, who. 
  • When asked by one person if it will portray hope about recovery, they refused to clarify, simply commenting it is an observational piece.   

Whilst the above concerns do not preclude them from making a fantastic programme, in fact we sincerely hope it will be. Our concerns are such that we cannot support this programme at this time, if our concerns are later allayed then we will of course be happy to support such a project and will update accordingly.

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OCD-UK, Marble Hall (Office 5), 80 Nightingale Road, Derby DE24 8BF

OCD-UK is a non-profit making charity and not associated with any other organisation. Medical information is provided for education/information purposes only, you should obtain further advice from your doctor. Any links to external websites have been carefully selected, however we are not responsible for the content of these third party websites.